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HHT卓越中心

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(415) 353-8867

The UCSF HHT卓越中心 擅长综合筛选, diagnosis and treatment of hereditary hemorrhagic telangiectasia (HHT), 一种影响血管的遗传性疾病. We have been designated a center of excellence by Cure HHT, HHT研究的主要组织, 教育和患者倡导.

Because HHT can affect multiple parts of the body, our team includes experts in numerous fields. These include interventional and neurointerventional radiology, pediatrics, 医学遗传学, hematology, 耳鼻喉科-头颈外科, cardiology, dermatology, 胃肠病学, neurology, 神经外科和肺科.

We trace each patient's genetic history of HHT and work closely with referring doctors to develop a personalized treatment plan.

Our clinic is associated with the UCSF脑血管研究中心 (CCR), which focuses its studies on vascular malformations of the brain. The CCR has a special interest in HHT, one of the few inherited causes of brain 动静脉畸形 (异常的动静脉纠结在一起).

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我们的服务

  • Patient education and management of HHT-associated symptoms and complications
  • The most advanced screening and diagnostic tests for serious complications of HHT, 如动静脉畸形
  • 微创方法治疗HHT, offered at state-of-the art interventional and neurointerventional radiology facilities
  • Care by the neurointerventional radiologists who pioneered many of the treatments for 动静脉畸形

图片和报告

得到你的结果

A radiologist will review your images and write a report. When finalized, the report and your images will be available in MyChart是加州大学旧金山分校为患者提供的安全在线门户网站. 一旦发生这种情况,您就可以访问此报告, so you may see it before your referring doctor does. 了解更多关于 receiving test results and medical reports in MyChart. If you have questions about a report, please contact your referring doctor.

To get a CD of your medical images and reports, send a request to the UCSF影像图书馆.

向UCSF发送图像

If you need to send medical images that were taken at another institution to your UCSF radiologist, 您可以通过我们安全的在线门户网站进行申请. 有关说明,请浏览 如何向UCSF发送放射学图像.

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我们的位置

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    装饰墨丘利的节

    全国肝癌筛查试验

    晚期发现HCC的比例, defined as HCC beyond Milan Criteria (one tumor less than or equal to 5 cm or 2-3 tumors each less than or equal to 3 cm, in the absence of vascular invasion or extra-hepatic metastases)

    Recruiting

    装饰墨丘利的节

    Comprehensive HHT Outcomes Registry of the United States (CHORUS)

    利用“HHT基线评估量表”," this measure focuses on recruiting a diverse cohort of HHT patients across North America. Comprehensive baseline clinical, demographic, and lifestyle data will be collected and entere...

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    装饰墨丘利的节

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    活着的病人总数

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    装饰墨丘利的节

    ALTA TIPS: A 5-year Longitudinal Observational Study of Patients Undergoing TIPS Placement

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    装饰墨丘利的节

    Cerebral Hemorrhage Risk in Hereditary Hemorrhagic Telangiectasia

    This study will investigate predictors of brain outcomes in HHT patients. The investigators hypothesize that the presence of brain arteriovenous malformation (BAVM) in HHT patients versus HHT patients without BAVM and multiplicity...

    Recruiting

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    装饰墨丘利的节

    肝移植的功能评估

    握力:基于表现. 以公斤计. This was measured in each subject's dominant hand using a hand dynamometer (Jamar Hydraulic hand dynamometer). 我们平均进行了三次试验. 椅架:基于性能. Mea...

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    TEAEs as grouped by MedDRA system organ class and relationship to treatment.

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    相关诊所

    介入放射学诊所

    帕纳萨斯大道505号.M-361房间
    旧金山,加州94143

    Neurointerventional放射学

    帕纳萨斯大道505号.三楼L-349室
    旧金山,加州94143

    中风的诊所

    帕纳萨斯大街400号.8楼
    旧金山,加州94143

    我们的研究计划

    • UCSF-Center-for-Cerebrovascular-Research-2x

      UCSF脑血管研究中心

      The UCSF脑血管研究中心 studies many aspects of cerebrovascular disease, 从遗传学到治疗结果, with a focus on vascular malformations of the brain.

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